| Abstract | Talasemia adalah penyakit kelainan darah akibat kekurangan atau penurunan produksi hemoglobin. Jumlah penderita talasemia di YayasanàTalasemia Indonesia cabang Banyumas terus meningkat. Tujuan penelitianàini untuk mendeskripsikan karakteristik penderita talasemia di YayasanàTalasemia Indonesia cabang Banyumas tahun 2012. Penelitian kuantitatifàdengan desain penelitian cross sectional ini dilakukan terhadap 64 sampelàyang diambil dengan teknik proportionate stratified random sampling . Dataàdikumpulkan meliputi melalui wawancara terstruktur menggunakan kuesioner. Metode analisis yang digunakan adalah analisis deskriptif univariat.àHasil penelitian menunjukkan bahwa penderita talasemia rata-rata berusiaà12,28 tahun, berjenis kelamin laki-laki (51,6%), sedang sekolah SDà(40,6%), bukan angkatan kerja (92,2%), talasemia ò-mayor (90,6%), tidakàsplenektomi (84,4%), jaminan kesehatan masyarakat (Jamkesmas)à(73,4%), kadar feritin âÂÂ¥ 2000 ng/mL (90,4%), kelasi deferioprone, vitamin C,àdan deferioksamin (81,2%), tinggal di Kabupaten Banyumas (79,7%), trans-fusi darah di Rumah Sakit Umum Daerah (RSUD) Banyumas (95,3%), rata-rata terdiagnosis usia 3,7 tahun, usia rata-rata mulai transfusi darah adalahà3,78 tahun. Frekuensi transfusi darah 1 bulan 1 kali (87,5%), dan frekuensi terapi kelasi zat besi mengonsumsi vitamin C 30 kali dalam 1 bulanà(95,3%).Kata kunci: Hemoglobin, kelainan darah, talasemia AbstractThalassaemia is blood disorder caused by deficiency or decrease in production/formation of hemoglobin. Number of thalassaemia patients inàYayasan Talasemia Indonesia (Indonesian Thalassemia Foundation)àBanyumas branch countinue to increase. The research purpose is to describe the characteristics of thalassemia patients in YTI Banyumas. The research type is a quantitative approach with cross sectional research design.àSample of 64 people taken by proportionate stratified random sampling.àData collected includes characteristics of the respondents based on theàvariables of people, places, and time was obtained through interviews usingàa questionnaire. The univariate descriptive analysis were use to describeàthe characteristics of the respondents. The results showed that thala-ssaemia patients at YTI Banyumas have several characteristics: averageàage of 12,28 years, male (51,6%), elementary students (40,6%), the laborforce (92,2%), b-thalassemia major (90,6%), no splenectomy (84,4%),àJamkesmas (73,4%), ferritin levels âÂÂ¥ 2000 ng/mL (90,4%), sailor deferio-prone, vitamin C, and deferioksamin (81,2%), live in Banyumas (79,7%),àblood transfusions in hospitals Banyumas (95,3%), the average age of diagnosis of 3,7 years, the average age of starting a blood transfusion was 3,78àyears. Once a month blood transfusion (87,5%), and the frequency of ironàchelation therapy by consuming vitamin C 30 times in one month (95,3%).Key words: Hemoglobin, blood disorder, thalassemia |
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